dont_judge_me_monkey

I too also have cf, I'm 36 and have been quite lucky up til now. I was healthy enough growing up that i was able play sports and had to stop around 33 because it finally caught up to me.my lung capacity is around 40 percent. And up until now never spoke to another person who has it. What meds are you taking?

I've tried zithromax in the past and it is not very effective for me, all depends on what bacterias you have. If you're taking tobi then you might qualify for cayston. Do you or have participated in any studies? BTW, 2 things I found what I believe to be detrimental to my health is:
1. Not drinking enough water. If your lungs are well hydrated then it is easier to cough of the mucus (10 years to figure this one out).
2. When I was prob about 27 my blood sugars started to rise and the doctors didn't test for it. So initially, I got sick every 6 months and had to go on IV antibiotics. After being diagnosed diabetic(common in CF) my health got better and haven't been on IV since.

It's the doctors that tell things you should be doing and of course when you feel well you don't always do what they say or really understand the impact it has until you see the results for yourself.

I'm sure your parents probably already mentioned this, but patients with CF who surf often have better lung function. I may be wrong but I think that's how they found out inhaling hypertonic saline came about.