cwleveck

I am 45 and have been diagnosed with Lewy Body Dementia. How will I and my family know when the right time is to put me in a home? I don't want to be a burden on them but I don't want to lose time with them either. I'm only starting to have trouble with memory now. I lose a lot of arguments, and I get confused, sometimes a little scared if I am not sure what's going on around me. Usually takes me a little while to figure out where I am when I wake up in the morning or from the occasional nap.

I have the occasional "why me" pity party... But then I tell myself it's ok because my wife and kids are healthy. If someone has to be sick I'm grateful it's me and not them. I also take some selfish comfort in the fact that I will probably die first. Can't bare the thought of losing any of them.

I have lived, seriously. I have two beautiful children and a wife of 23 years. Ive had Brothers in Arms, and a brother in real life. I loved a couple of amazing dogs, and they loved me. I had it rough growing up, so I appreciate what I have. No complaints. And no not religious. That's okay. If there's something after this I would assume that they'll give me a chance to come in, and if not, I will be the only one who doesn't know I'm dead. And to be honest with you, I could use a nap. My disease has meant a life of pain. Serious pain. The thought of being painless it's kind of something to look forward to.

Hmmmmm. Yeah. Appreciate the advice. Really. It's good advice.... Already doing/done it. For what it's worth the notes are a great suggestion. Helps me remember things that are important to me. I can see a day where I'm going to have to give myself notes about who to trust. Will be good if I recognize the handwriting.

Edit: "Forgot" how to spell advice.. fixed it.

My wife and one of my kids are reading all these with me, and I'm pretty sure we're on the same page here. And don't feel bad for me, I don't feel bad for me. If you've read any of my other posts here, I'm doing okay with it. And I still have lots of time. Lot's being relative, of course, to different people. But we're doing fine. Thanks again for all the concern.