cwleveck3899 karma2017-11-04 23:24:57 UTC
I am 45 and have been diagnosed with Lewy Body Dementia.
How will I and my family know when the right time is to put me in a home?
I don't want to be a burden on them but I don't want to lose time with them either.
I'm only starting to have trouble with memory now. I lose a lot of arguments, and I get confused, sometimes a little scared if I am not sure what's going on around me. Usually takes me a little while to figure out where I am when I wake up in the morning or from the occasional nap.
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cwleveck1549 karma2017-11-04 23:49:10 UTC
I have the occasional "why me" pity party...
But then I tell myself it's ok because my wife and kids are healthy. If someone has to be sick I'm grateful it's me and not them.
I also take some selfish comfort in the fact that I will probably die first. Can't bare the thought of losing any of them.
cwleveck848 karma2017-11-05 00:19:09 UTC
I have lived, seriously. I have two beautiful children and a wife of 23 years.
Ive had Brothers in Arms, and a brother in real life. I loved a couple of amazing dogs, and they loved me.
I had it rough growing up, so I appreciate what I have.
And no not religious. That's okay. If there's something after this I would assume that they'll give me a chance to come in, and if not, I will be the only one who doesn't know I'm dead.
And to be honest with you, I could use a nap.
My disease has meant a life of pain. Serious pain.
The thought of being painless it's kind of something to look forward to.
cwleveck352 karma2017-11-04 23:52:54 UTC
Hmmmmm. Yeah. Appreciate the advice. Really. It's good advice....
Already doing/done it.
For what it's worth the notes are a great suggestion. Helps me remember things that are important to me.
I can see a day where I'm going to have to give myself notes about who to trust.
Will be good if I recognize the handwriting.
Edit: "Forgot" how to spell advice.. fixed it.
cwleveck166 karma2017-11-05 01:16:34 UTC
My wife and one of my kids are reading all these with me, and I'm pretty sure we're on the same page here.
And don't feel bad for me, I don't feel bad for me. If you've read any of my other posts here, I'm doing okay with it. And I still have lots of time.
Lot's being relative, of course, to different people. But we're doing fine.
Thanks again for all the concern.
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