cnestler

Wow, i too have cf and i feel like everything i just read came from my own mind. Iv really started to notice through the years that people with cf seem to be really down to earth people. So from one Cfer to another, every time u go to the hospital, do u feel like u'll always get back to ur baseline no matter how sick u are?

Ever since i hit puberty, my lung function dropped around 30% and it seemed to drop like 2% or so with each hospitalization. But even with that large of a drop i feel and still feel that my lungs are at least going to get back to my baseline and when it doesn't i think of it like a test in school, its only a % or 2. I say i got cf pretty bad, but if i can still do physically demanding things for fun then why worry about pft's that much. The way I c it, if i cant do anything physical that's probably when its time to worry. U said u surf, so do u gauge how well u are doing by surfing?

Im not sure about cf detection of an unborn child, but now every child gets tested for cf. If the child does happen to have cf and its detected right away (which it should be) the child will have a pretty healthy life, all treatments are becoming more advanced. Those of us 18 and older just missed the mandatory cf testing for newborns.

haha my bad. Since u left the hospital have you tried running? U thinking your not getting back to normal cuz u cant run has far?