I have a Müllerian anomaly as well! I was born with a unicornuate uterus, with a noncommunicating horn (I don’t have a diagram handy, but you can Google it). I was diagnosed at 15 because of incredibly painful menstrual cramps from my noncommunicating horn (right side). I had to have a hemi-hysterectomy to remove that side. They did leave the right ovary because there was nothing wrong with it, and my doctors tell me it’s possible that one of those eggs could travel to my left side.
My remaining uterine cavity is also smaller than usual. So when I got pregnant I also had to have a c-section. It was scheduled for 37 weeks but it seems like my daughter just ran out of room and my water broke at 33w5d. I think I was diagnosed with IUGR at 32 or 33 weeks. It’s team my common for women in our situation.
Second question- If they told you to only get pregnant on one side, why can’t you get a hysterectomy on the other side? Because they think that eggs from that side are traveling to your other Fallopian tube? (Which I know is not an uncommon theory, but you also say you have a cartilage wall in there.)
P.S. Very interesting to see that you have normal kidneys! I don’t know if you’re aware but most Müllerian anomalies come with kidney anomalies. My right kidney is a hydronephrotic pelvic kidney. That also wasn’t diagnosed until everything else, and it ended my field hockey career for fear that I could injure my only functioning kidney.
ETA: Just saw that you’re a vegan, me too! Must run with the mutation or something!
clairekat41 karma
Have you been diagnosed with IUGR yet?
I have a Müllerian anomaly as well! I was born with a unicornuate uterus, with a noncommunicating horn (I don’t have a diagram handy, but you can Google it). I was diagnosed at 15 because of incredibly painful menstrual cramps from my noncommunicating horn (right side). I had to have a hemi-hysterectomy to remove that side. They did leave the right ovary because there was nothing wrong with it, and my doctors tell me it’s possible that one of those eggs could travel to my left side.
My remaining uterine cavity is also smaller than usual. So when I got pregnant I also had to have a c-section. It was scheduled for 37 weeks but it seems like my daughter just ran out of room and my water broke at 33w5d. I think I was diagnosed with IUGR at 32 or 33 weeks. It’s team my common for women in our situation.
Second question- If they told you to only get pregnant on one side, why can’t you get a hysterectomy on the other side? Because they think that eggs from that side are traveling to your other Fallopian tube? (Which I know is not an uncommon theory, but you also say you have a cartilage wall in there.)
P.S. Very interesting to see that you have normal kidneys! I don’t know if you’re aware but most Müllerian anomalies come with kidney anomalies. My right kidney is a hydronephrotic pelvic kidney. That also wasn’t diagnosed until everything else, and it ended my field hockey career for fear that I could injure my only functioning kidney.
ETA: Just saw that you’re a vegan, me too! Must run with the mutation or something!
EDIT 2: Corrected which horn was noncommunicating
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