civilizedanimal

What's your major? If I'm not asking too many questions already

Wish I had time to ask you more. Last question(s). So, obviously treatment would be expensive and possibly not covered, so what if there was an experimental new treatment that hasn't seen rigorous animal testing yet, but what it has seen in testing shows it to be super effective; Would you take therapy in the interest of getting treatment sooner and saving a bit? And lastly, where would you hope to get this new treatment, would it be a medical university? I ask this because I'm really interested in how much it would cost.

Way to go man. Stay positive. I had a lot of the same goals before my accident, and I would have done anything to be able to walk again, so I totally get it. And remember, even though you may have to cross some things off your list reluctantly, there's till lots of things to add .. trust me. I'll ask you more tomorrow. Cheers

So saying that this potential treatment works, Have any doctors talked with you about the ability to reverse changes that have already occurred (like removing bone growths or whatnot)?

From the bits that I can remember I will try to form my question. If I remember correctly FOP was something like an autoimmune disorder coupled with a genetic mutation, right? So if the problem is actual bone forming in the muscles (presumably do to exercise or injury), then are osteoclasts and osteoblasts forming there too? The reason I ask is because I'm curious as to what type of treatment they'd like to test. Off the top of my head I'd think that they would want to selectively kill off osteoblasts in the affected areas while keeping osteoblasts alive. Sorry for my verbosity, I'm very curious