thanks so much for posting this to help raise awareness. I know it's hard to put yourself out there. My 16 year old daughter Cassie died from complications of EB in January. We've been trying to raise awareness through a film called Black Hat that's going to feature a character named after her(https://www.facebook.com/blackhatcassie) and some of the proceeds will go to EB research. Are you interested in possibly pursuing the bone marrow transplant that Dr. Tolar's team is doing in Minnesota?
cajundharma26 karma
thanks so much for posting this to help raise awareness. I know it's hard to put yourself out there. My 16 year old daughter Cassie died from complications of EB in January. We've been trying to raise awareness through a film called Black Hat that's going to feature a character named after her(https://www.facebook.com/blackhatcassie) and some of the proceeds will go to EB research. Are you interested in possibly pursuing the bone marrow transplant that Dr. Tolar's team is doing in Minnesota?
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