burbuja11

I live in Cuenca, Ecuador. Did you know that there is a high number of people with albinism in the region? I see at least one person every other week either in the city or in the countryside. Do you know why that is? How many other people with albinism do you randomly see? Thanks for the discussion!

Yes, I think that the people here with albinism, especially those in rural and indigenous communities, must have skin problems. Sunscreen is very expensive and I don't notice them using extra protective clothing like hats and sunglasses.

How would that feel to see another person with albinism more often in the streets?

Thanks!

Do you do any work with albinism outreach? Are there any organizations that work towards helping people with albinism internationally?

Also, do you think that calling a person an "albino" is offensive? Is it preferred to say, "person with albinism"?

Thanks for the explanation!

Do you think that these organizations would be interested in a joint partnership with the American Cancer Society or ICAN the International Cancer Advocacy Network in working with low-income families and people with albinism in developing countries? That would be an impactful alliance that could generate significant and meaningful changes in places like Ecuador.

Wow. It seems like there might be some fundraising opportunities with sunscreen providers. That's interesting.