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blindmikey9 karma

My wife had CRPS, she simply knelt down in the garden one random day and her calf muscle snapped; typically you'd go through normal recovery and PT, but her pain not only stuck around but got worse and spread into her entire leg; pain would be worsened by things that didn't make any sense, like even light touch, temperature, going over a bumpy road in the car or wheelchair; all from kneeling down in the garden one day.

Come to find out, she tested 100% positive for Ehlers–Danlos syndrome, a condition that has silently effected her entire life. Learning this was both a curse and a blessing; it suddenly and very accurately explained many of the seemingly separate issues she's had growing up.

There is (albeit small amount of) documentation showing a connection between Ehlers–Danlos syndrome and CRPS.

Her treatment was a good constant dosage of Tramadol, which did not help until she was on it regularly for a month or two. We also supplemented a strain of cannabis that was extremely high in CBDs and very low in THC, after reading about another small group of studies on CBDs and CRPS. Not only could she actually stay mentally agile while on these two medicines, but she began to feel relief - something those other pain killers and narcotics couldn't provide her with.

I'm not sure if it was one or both of the two medicines, or something else, but 4 months ago she was in a wheel chair or bed 24/7; Now she is up and about and only has occasional small flareups.

I know everyone is different, but I also know that the more people talk about their experiences, the more information we have to help find solutions.

I wish you every bit the best of luck.