My son has Menkes disease, which apparently used to be confused with EDS. He has most symptoms that you have described so I can see why now. He's only 4 but he's got the loose skin, joints that are super flexible and pop out of place, bladder issues, really light blue eyes, and a high palate with dental crowding. Did any of those things affect your self esteem when you were younger or did you not realize you were different from your typical peers until much later?
betty_efin_crocker1 karma
My son has Menkes disease, which apparently used to be confused with EDS. He has most symptoms that you have described so I can see why now. He's only 4 but he's got the loose skin, joints that are super flexible and pop out of place, bladder issues, really light blue eyes, and a high palate with dental crowding. Did any of those things affect your self esteem when you were younger or did you not realize you were different from your typical peers until much later?
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