badgreengator

fellow EDSer here :D

When I was first diagnosed I actually got the dual diagnosis of EDS and POTS. I went home and rested a bit, and by the time I woke up it was already afternoon. I figured I'd go out and get the mail before making dinner. I stepped out on the stairs and everything went black. I woke up at the bottom of the stair with a dislocated hip, knee, shoulder, and a few fingers. I had passed out from the POTS since I had just gotten out of bed not a minute before and rolled down the stairs.

I'm a female EDSer with a career.

I think the show got EDS mixed up a bit with Dysautonomia, which is a very common comorbidity for people with EDS. I think it's something like 80-90% of people with EDS have POTS, which is a form a dysautonomia. I have both. With dysautonomia it is possible to get dehydrated pretty easily, especially considering how much salt people with POTS need to supplement to keep their blood pressure up. With POTS, when you exercise, or get up from laying/sitting, or even go out in high heat, you might faint due to a rapid rise in heart rate and drop in blood pressure. This is why sometimes a saline solution can make a POTS patient feel amazing. The dislocation of her shoulder part is EDS.

Np, happy to answer any questions you have. Us EDSers are all really different. It's cool to see people interested in learning about the disorder. I was diagnosed almost 10 years ago and places like this to talk about these things weren't really big then. Nice to see word getting out :)