angelorphan

Hi I'm Japanese.I'm so sorry for things happening to you.my maternal family gets familial breast cancer after Hiroshima.(when my mother was a kid)It led my cancer screening covered by health insurance.

Usher syndrome(アッシャー症候群)is 指定難病。(Designated intractable disease -for other readers)You can get medical expense help if you're citizen here.Did you get those information?

Information here: https://www.nanbyou.or.jp/entry/5460

網膜色素変性症 information : https://www.nanbyou.or.jp/entry/196

I hope family member will read this for you if you didn't read these ones already.(I guess you know these ones already.)

Edit:Question was too personal.

Hi Grant!! Years ago,I remember you had trouble in Myspace probing you're real Grant,which I was touched.Now social media grew huge size,Do you have same passion to connect watchers?

Great! :D That's the reason I respect you.oh I used to be Mythbusters fan club.Many Japanese(Me too) fans affectionately call you Imahara-san :)Thank you for reply!

Hello,Thank you for AMA!

I happens to be porchlightusa's member,although not active,but I didn't post about Hague case. (I don't know whether it's ok to call your situation as Hague case..)

I didn't know there are websites gather donation for one side of parent.It frustrates me.

Looking back,as an adult,is there any way your young parents find other way,which will not end up you moved frequently and home schooled?

Edit;I mean,Do you think,was there any way ,like government's help,to make you as a child's life easier?

Sorry about my English,I'm in japan.(where many Hague case happens)

You're same age with my niece,who is ALL surviver!(She got it also when she was 17) yeah,her family(my sister's family) too was helped before she became 18,here in Japan we can get government help for certain "Childhood serious disease"including leukemia.I recommend you to use all help you can use.

My niece is now doing fine,(despite last year she was in ICU with a reaction of transplant)but had to get knee surgery on this March because of extensive steroid use.

To ask help is not a weakness :) Here we all know you and all who got cancer are fighter!

Also for your another comment ,"treated as PEDs patient".My niece was at first "adult patient".It was hard for her.Later she moved to pediatric hospital,it eased her stress.As I was not with her,(My sister doesn't like my lots of googling,when it comes my niece's disease) I understood how scary it was reading your comment.I don't know I can deal with it.