My sister had FOP until she passed away. She lost her balance and struck her head. Always watch your balance and protect your head man. I am about to participate in a clinical study run by UCSF, sending them some blood for them to do genetic testing on. They are basically studying skeletal diseases and would like samples from persons having or related to those with FOP. Anyway, just wanted you to know people are working on it (though you are probably already aware). Was great to see your post. Keep spreading the word and hang in there.
altmiket1195 karma
My sister had FOP until she passed away. She lost her balance and struck her head. Always watch your balance and protect your head man. I am about to participate in a clinical study run by UCSF, sending them some blood for them to do genetic testing on. They are basically studying skeletal diseases and would like samples from persons having or related to those with FOP. Anyway, just wanted you to know people are working on it (though you are probably already aware). Was great to see your post. Keep spreading the word and hang in there.
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