My 11 y/o daughter was recently diagnosed with restrictive HCM w/ polymorphic VT, had a ICD placed in October 2018 ad is about to be listed as level 2 with a possible move to 1b once we reclocate closer to the transplant facility.
One of my biggest fears is that she receives a transplant (which I know will greatly improve here QOL) and a few months or years later a breakthrough occurs that could reverse the issue (specifically read up quite a bit on what myokardia is doing with medicine). My concern is she will need another transplant in 10 years give or take and her life expectancy natrually is reduced as through the current lens of medicine most receipients will develop coronary heart disease.
What is your advise for someone like me who is very concerned about this?
Secondly in your opinion how close are we to using stem cells to generate organs (in hopes of eleiminting the rejection factor)?
alltheserocks1 karma
My 11 y/o daughter was recently diagnosed with restrictive HCM w/ polymorphic VT, had a ICD placed in October 2018 ad is about to be listed as level 2 with a possible move to 1b once we reclocate closer to the transplant facility.
One of my biggest fears is that she receives a transplant (which I know will greatly improve here QOL) and a few months or years later a breakthrough occurs that could reverse the issue (specifically read up quite a bit on what myokardia is doing with medicine). My concern is she will need another transplant in 10 years give or take and her life expectancy natrually is reduced as through the current lens of medicine most receipients will develop coronary heart disease.
What is your advise for someone like me who is very concerned about this?
Secondly in your opinion how close are we to using stem cells to generate organs (in hopes of eleiminting the rejection factor)?
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