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Zrewl2 karma

What was the name of the surgery?

They are talking about using...stereo something something abalation on my brother to burn out a hamartoma to hopefully stop his epilepsy. It's apparently a very rare thing.

Zrewl1 karma

Hmm, I know there's only been 100 or less of his procedure done on the planet. So I am not sure if it's the technology or the location of the malformation. A lot of terminology, doctors names, medications, etc to remember just for him, let alone myself.

Zrewl1 karma

Oh they are talking about having to send him to the mayo clinic just to have doctors who are familiar with the technique and location. It's going to be awhile if it ever happens.