Does physiotherapy or muscle training make up a large part of your regimen?
A lady I know spontaneously developed this condition some years ago, around middle age. Now some days she can't get out of bed, others she's fine albeit with very limited activity. She's constantly in physiotherapy to try and maintain muscle strength and needs crazy amounts of sleep to function. It's a very strange disorder and one that I had never heard about prior to meeting her. Thanks for helping raise awareness, hopefully we'll see improved treatment in the future.
VonPursey1 karma
Does physiotherapy or muscle training make up a large part of your regimen?
A lady I know spontaneously developed this condition some years ago, around middle age. Now some days she can't get out of bed, others she's fine albeit with very limited activity. She's constantly in physiotherapy to try and maintain muscle strength and needs crazy amounts of sleep to function. It's a very strange disorder and one that I had never heard about prior to meeting her. Thanks for helping raise awareness, hopefully we'll see improved treatment in the future.
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