Tyrannosaurus_Pecs
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Tyrannosaurus_Pecs1 karma
Hey, congrats on your recovery, so good to hear successful cases.
My 7yo,nephew was recently diagnosed with ewings in the sacral area, and is currently going through treatment. It made me really happy learning of your success. I'm going to send this to his parents.
The hospital visits are wearing him down, do you have any suggestions that helped you along the way?
Tyrannosaurus_Pecs1 karma
Yea we got him a ps4 and he loves playing it.
That's the approach my wife and I are taking as in treating him like a normal kid, bc he's still a kid, and that's why he loves being with us - so we play games, talk about poop and farts, and gets his mind off things. while his parents and doctors try to focus more on his care which wears at him too. He gets frustrated by all the constant questions and forced eating. It's tough when we could only see him a couple hours a week.
The only issue is when he's mentally exhausted he doesn't want to say what's bothering him bc he doesn't want to go to the hospital, which makes everyone more worried.
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