This is such crazy timing, I literally just found out I am a carrier of Zellweger Spectrum Disorder this morning.. My wife and I are going through IUI/IVF now after years of trying unsuccessfully. She is not a carrier so we are thankful there is no real concern for us. I am so sorry to hear about your loss, after reading about it a little this morning I would never wish it on anyone or their children.
What are the ultimate goals of your nonprofit? Is it primarily to benefit the families who have lost their children or funding towards research, providing genetic testing, or something else? What are the chances or fixing something like ZSD using a gene editing technology like CRISPR or is it just simpler to select with IVF?
Toxcito22 karma
This is such crazy timing, I literally just found out I am a carrier of Zellweger Spectrum Disorder this morning.. My wife and I are going through IUI/IVF now after years of trying unsuccessfully. She is not a carrier so we are thankful there is no real concern for us. I am so sorry to hear about your loss, after reading about it a little this morning I would never wish it on anyone or their children.
What are the ultimate goals of your nonprofit? Is it primarily to benefit the families who have lost their children or funding towards research, providing genetic testing, or something else? What are the chances or fixing something like ZSD using a gene editing technology like CRISPR or is it just simpler to select with IVF?
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