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Top21Solis440 karma

It's not fun at all. There are many types of seizures. I believe I am having them in my sleep, but I mostly have them while awake. It's a feeling like no other, to have no control of your body. At first it starts off with really hard jerks to my left, my head twists jerks and jerks, then as it progresses, the jerks get smaller and my body begins to "vibrate" or seize up. Before I used to lose conscious. Now I am fully awake. I see, hear, and feel everything. everything is blurry because my eyes are rolled up into my head and vibrating. I can hear my parents trying to calm me, I hear myself gasping. I cant breath. I feel like, electrical pulses running through my body. After about a minute, it's over. And let me tell you, that minute is hell. And feels like years. I am exhausted. You will never ever ever be tired until you have a seizure. God forbid. So tired I can hardly blink I kid you not. I am hyperventilating super fast and short. No matter how much I try, I cant fill my lungs. Im like, limp. And still feel like pulses of electricity running down my right leg and arm. My left leg and arm are literally paralyzed after a seizure. 100% 0 feeling. cut it off and I wont feel a thing. As if I had a stroke. my left hand is clenched shut so tight. I have to wait about 5 minutes until I can start moving my foot and hand again, and massage my left hand open. If i dont keep my nails cut, they will tear straight through. After, I have extreme nausea for like 30 minutes. Then a pounding heading for about 3 days. This doesn't even come close to explaining what it actually feels like. Its a feeling like no other. I'm afraid I'm going to break my thumb one day break during my seizures, my fingers squeeze down on my thumb. My toes also curl extremely hard, to the point were I cant walk for a good while because they are so sore. Every single muscle in your body contracts as you have an electrical pulse racing through it.

Top21Solis260 karma

And the best thing someone can do is protect the head and hold them on their side. Do so to drain any spit. So they don't choke on it. Don't hold their arms or legs and try to stop them from seizing. It really hurts. Let them be. It will pass. Unless it passes 4 minutes don't call 911. just adds hospital bills. Unless you know they don't have a history of seizures. And never put anything in their mouth. That's a myth. It will break their teeth, make them bite off their tongue or bite off the persons finger, if they are dumb enough to do that.

Top21Solis70 karma

Completely different. I was going to join the Airforce, and that got shot. Realized I can't drive. Can't work certain jobs. Can't be alone. I just try to be positive now. But before, I completely gave up. Medication with side effects of suicidal thoughts wasn't helping either. Now I'm taking college classes online and patiently waiting for my doctors next step.

Top21Solis65 karma

Almost 10 years and still unknown? Man these things suck...Yeah a lot of people will freak out when seeing someone have a seizure. I kinda don't blame them, it's not a pretty thing to look at. My gf of 2 years witnessed a couple of my seizures and she took very good care of me as well but we split this February mostly because of my condition :/ I've only been taken to the ER one time for a seizure and that was my first. Because, Well I randomly had a seizure at the age of 15. And I have Grand mals. But I never lose consciousness. I see feel and hear everything. It's horrible. I feel like I'm on the brink of passing out sometimes right when the seizing stops. Probably from lack of oxygen I'm guessing. I also have simple partials, where again Im awake but just one side of my body is jerking constantly really hard and fast. And daily, maybe 50+ times a day, I'm just twitching here and there. You wont notice it unless you really look. Although some of them are really big, hard twitches. More like contractions, then release. My hand or fingers would quickly shut, my leg would pull in, neck would twist, peck would flex, butt cheek would would contract and release, or just a whole body twitch like if someone scared me. Idk what thats called. I just call them twitches. Meds haven't really helped I guess. I mean idk if they are doing anything now. I could stop taking them today and have 100 seizures tonight. So they might? But as of now, they havnt done much. I am currently taking Tripeptal, Captopril, Topiramate, Vimpate, diazepam(as needed), and Midazolam(as needed). I am also taking a round of Immune globulin once a month by IV. I even took 2 rounds of chemo! And keppra is a no no for me! That was the first med I was given and I started thinking suicidal. It was at the beginning of all of this so I thought my life was over anyways. I was taken off of that and got help. That med didn't work for me anyway. I know what you mean about understanding. And you should check out /r/epilepsy theres quiet a bit of us out there.

Top21Solis41 karma

I love ridiculousness. Always gives me a good laugh. Grown ups, Let's be Cops, really any good comedy with good actors. I'm also a big UFC fan. I grew up watching WWE wrestling but as a matured, I realized all the fake in it. So every once in a while me and my dad will watch it again and get a really good laugh at a obviously fake punch, or wrestling move or something.