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TonyFantasma18 karma

Hey, out of all the SBSK episodes ive seen, yours is the one that resonated with me the most. because yours was the only one ive seen where the person being interviewed was candid about their disability.

You said something along the lines of you don’t believe in toxic positivity and you were honest about the fact that you have this disease and that its unfair and it totally fucked up your life. I still think about that interview alot. Sometimes i wonder if the toxic positivity is a form of denial or a coping mechanism.

I sustained a severe burn a while ago. It was very painful but the hardest part was the lack of control. I had no control over the situation. I was at the mercy of the nurses and doctors. If i didnt have a hospital to go to id be in a bad way. I had to lie in bed for a month and just heal. The lack of control was difficult for me. So i cant even imagine how difficult your condition must be to live with for you. The lack of control in particular. (Mind you, im a huge pussy.) When i was going through it i thought about that interview alot. all this pain and lack of control and fear of your body changing and the inevitability of an eventual death i imagine you must feel, i assume gives you a unique perspective into the philosophy of life, death and meaning. Do you have any insights you can share? Whats your philosophy? Whats really important in life?

Sorry if this sounds corny, and i know you didn’t ask for this condition, but i cant help but view you as brave and wise for fighting through this. Are you the unluckiest guy alive because you have this condition? or are you the luckiest guy alive because you have this condition but youre still alive, against all odds, and helping others despite your own challenges in life? Do you believe in a higher power or destiny/ fate?