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TheGrandConjuration4 karma

I've been dealing with POTS for about 8 years now. I'm glad you're trying to spread awareness! I've had so many people, including doctors, just not understand it at all or think I'm overreacting when I get too lightheaded or dizzy. Ugh.

It's had a huge negative impact on my life (I used to be a dancer) so I know how frustrating it can be. If you even want someone else to talk to about it/vent/whatever, feel free to send me a message!

TheGrandConjuration3 karma

Same here. I explain it and they're like "hmm, never heard of it." D: I mean, it's unreasonable to expect that all doctors know every single syndrome but every time I go to a new doctor for whatever reason I have to give them my whole story.