This is so interesting. I have a baby with dwarfism, and the discussion about limb lengthening has also shown to be very controversial within the community. Apparently the surgery has come a very long way and they can do amazing things, but many in the little people community are very against it for the same reasons it sounds like many in the deaf community are against implants. My husband and I are certainly open to exploring limb lengthening for our child, and my only holdback is whether we do it while our child is young and get it out of the way (they can start as young as eight years old from what I understand), or wait until she can give her own informed consent as an adult. Is there any discussion of this issue in the deaf community surrounding implants? Thanks for sharing! Sometimes we have to do what we know is right for our children even if others don't understand.
TLady259 karma
This is so interesting. I have a baby with dwarfism, and the discussion about limb lengthening has also shown to be very controversial within the community. Apparently the surgery has come a very long way and they can do amazing things, but many in the little people community are very against it for the same reasons it sounds like many in the deaf community are against implants. My husband and I are certainly open to exploring limb lengthening for our child, and my only holdback is whether we do it while our child is young and get it out of the way (they can start as young as eight years old from what I understand), or wait until she can give her own informed consent as an adult. Is there any discussion of this issue in the deaf community surrounding implants? Thanks for sharing! Sometimes we have to do what we know is right for our children even if others don't understand.
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