Sylaethus

This looks to be something recent you found out. Was this something you’ve “always known”, what were your symptoms that lead you to find your diagnosis? I live in the USA, and work for the biggest hospital in my state, but curious to know how the medical system works in the UK. Was it a challenge to find your diagnosis? How long did it take to get your answers?

Sorry for all the questions. Ha. Also, hello from a fellow Samantha!

I see. I understand the wait for maturity for something that big to land in your lap. In honest opinion though, do you feel as though they should have told you sooner? Do you hold any resentment to that? In an unrelated way, and from your personal experience: what age would you feel is appropriate to learn oh heavy medical information?

I’m not too familiar with CMT. After googling it, I have a good grasp on the disease. I hope I don’t over step my bounds, but what was the process like for you to get your diagnosis? How old were you when you learned something was amiss?