My two children each have nut allergies- one who reacts in anaphylactic shock when he eats them, one who has sever eczema when she touches them. One we've traced through genetics, the other we wonder if it was inflamed by vaccinations. My girlfriend whose son I mention above has the gene for Celiac's Disease, but neither she nor her son present the actual disease. We talk a lot about genetics, allergies, and options for treatment and prevention, but frequently get frustrated with the way medical research and doctors overly-specialize these kinds of diseases. When it seems so obvious to us that they are related.
I guess my question is this- have you done much research, or taken part in any studies, trying to find any links between your situation, your genetics, your medical history (vaccines) and have you had much luck getting doctors to communicate? I know you mentioned that docs treated you like a guinea pig when you were younger, but I was more curious about official studies, not just confused and experimenting doctors. I am sorry to hear how they treated you and, as a mom, sad to hear that's how a kid feels when experiencing doctors' tests.
(And I just want to clarify- I am in no way anti-vaccine. I am very pro-vaccine. But understanding how vaccines work, we have to embrace there are some negative side effects for some people. Acknowledging these downsides does not force us to abandon vaccines but does help provide us opportunities to improve vaccines, and we should not be afraid to discuss that.)
SuperDuperLily3 karma
My friend's four year old son has what sounds like a similar situation, but it manifests itself in different ways- in his esophagus: http://www.apfed.org/drupal/drupal/what_is_eoe
My two children each have nut allergies- one who reacts in anaphylactic shock when he eats them, one who has sever eczema when she touches them. One we've traced through genetics, the other we wonder if it was inflamed by vaccinations. My girlfriend whose son I mention above has the gene for Celiac's Disease, but neither she nor her son present the actual disease. We talk a lot about genetics, allergies, and options for treatment and prevention, but frequently get frustrated with the way medical research and doctors overly-specialize these kinds of diseases. When it seems so obvious to us that they are related.
I guess my question is this- have you done much research, or taken part in any studies, trying to find any links between your situation, your genetics, your medical history (vaccines) and have you had much luck getting doctors to communicate? I know you mentioned that docs treated you like a guinea pig when you were younger, but I was more curious about official studies, not just confused and experimenting doctors. I am sorry to hear how they treated you and, as a mom, sad to hear that's how a kid feels when experiencing doctors' tests.
(And I just want to clarify- I am in no way anti-vaccine. I am very pro-vaccine. But understanding how vaccines work, we have to embrace there are some negative side effects for some people. Acknowledging these downsides does not force us to abandon vaccines but does help provide us opportunities to improve vaccines, and we should not be afraid to discuss that.)
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