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SirBruceMega21 karma

Someone else with IgA Nephropathy! Hey, brother/sister! If you don't mind me asking, how has it been treating you so far?

I was diagnosed at 10 via a biopsy. Nobody in my family has kidney issues, so I just lucked out. Had an annual appt with a nephrologist, never really altered my life until my creatinine started creeping up more and more. Eventually started hemodialysis when I was 21. And it sucked! I dry heaved after every single treatment. They kept trying to pull fluid out of my body when I was still urinating. Received a living donor transplant from my brother after 5 months of hemo.

However during the transplant, my transplanted ureter became pinched. As a result, waste was building up in my kidney which is disastrous. They had to set up a percutaneous nephrostomy (PCN) bag, which is a tube going from your kidney THROUGH your skin and goes into a thick plastic bag. Had that for 6 months. Eventually they attempted a procedure where they RE-transplanted my native ureter to my new kidney.

Other than that, life has been peachy! Creatinine is 1.5 which is absolutely gorgeous!

Good luck!

SirBruceMega13 karma

Oh Christ, I thought you meant that Jim Belushi was in a remake of the Sahara movie starring Matthew Mcconaughey and Penelope Cruz. That would have been terribly amazing.

SirBruceMega2 karma

Is Laura Silverman as adorable in real life as she is in animated form?

SirBruceMega1 karma

My girlfriend has just about the same allergies. She can't do gluten, dairy, 'nightshades' or anything with a lot of glucose/sugar. Her meals for the most part include: salmon, zucchini and quinoa on top of a lettuce salad with olive oil drizzled on, any type of steak that has no seasonings whatsoever (most seasonings have tomato powder in it), turkey quinoa meatloaf, or this seafood mix she makes with crab, clams, and some other fish mixed with quinoa. Her go to snack is anything from Lundberg's, mostly their sea salt rice chips. They're actually pretty tasty.

And she actually found out that she can drink Irish whiskey without it activating her allergy! Something about it being so distilled that the wheat germ is basically removed.

Good luck with this lifestyle, friend. There are plenty of food choices you still have available, and you're extremely fortunate to have been born into this technological age where you can research food options from your own home.

SirBruceMega1 karma

Cool, thanks for the advice!