ShinigamiLeaf

Hi there! I have EDS, another collagen disorder, and am currently waiting on genetic testing for the vascular subtype. My question is how have you found a comprehensive medical team? Collagen is in everything, and finding a whole team that knows collagen and MTCDs has been really difficult for me. So far I've got a cardiologist who knows about it, but feels like I'm too complex, so I'm waiting for Mayo. Have you had success in finding a comprehensive care team for all the neurological, GI, and rheumatology issues that collagen disorders come with?

That's fair, honestly I've found most doctors to be more trouble than help, especially if they don't know much about rare collagen disorders. Major props to managing without a care team!

What can people outside of the region do to help the people in Kashmir? Is there any reputable charity attempting to send generators and satellite dishes so people can continue to communicate, or food and medical aid? How bad are things currently in the region?

At least for chocolate, I've switched to Tony's Chocolonely and a local brand near me called Stonegrindz. I don't really buy a lot of frozen food products, but for drink mix (ie Nesquick) cocoa powder works. For coffee (Nescafe) I try to buy fair trade, but I know there's issues with that too

Basically ethical consumption under capitalism is impossible

How do you get into a compositional flow? I'm currently studying composition at university but can't seem to write more than 1-2 hours a day. I feel like I should be writing more but can't find focus or inspiration after a couple hours :(