Shandinavia

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No kidding? And here I was, seriously contemplating getting in my shitty, noisy car and driving out in the middle of nowhere to secretly break some complete strangers out of a facility and get taken to court and prison over it.

Dash it all.

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Thanks for your answer! I feel like since my BF told me the name of the condition, I've been seeing it crop up everywhere.

I'm not a carrier myself- I have no genetic history of cancer, but I've read that there's a 50% chance of it being passed on, and my boyfriend's father passed it on to four of his five tested children (potentially five out of six, if my boyfriend has it) which is pretty high. I've heard that selective IVF, while expensive, almost perfectly guarantees that your children won't have it (so long as the procedure is done correctly). So you can still have genetic offspring. I actually learned about that from a two series article published recently about a family in Utah that has LF. Although for their family, it proved extremely fatal. So far, despite the rarities of the cancers that my BF's family have all had, they've all recovered fairly well. His 16 year old sister had brain surgery just like you last summer and I met his family over Thanksgiving. We were all playing basketball and I was trying to be really careful around his family members because of the recent surgeries, but they were mowing me down. Totally unfair advantage, haha. ;)

Anyway, thanks again for the AMA, and best wishes to you!

This is what I plan on doing with my boyfriend who might have Li-Fraumeni. If he doesn't, great, but if he does, I don't love him any less, I just don't want to knowingly put my future children at risk. That seems so selfish to me.