I am a nurse in a long term care center. Currently take care of two HD residents. One of which is bed bound with no verbal capacity anymore, she expresses a lot with her eyes. Another who is wheelchair bound who is still high functioning and can do pretty much all activities of daily living independently.
The bed bound patient made it known that she did not want to live the way she does now but never got around to making any advanced directives, and her only relative, her POA, died in a car accident prior to getting all her wishes on paper. She did not want a feeding tube but had to have one put in due to her wishes not being written down.
My first question is have you, or your mother, given thought to about advanced directives?
And second, Have you heard of a drug called Xenazine? It helps to control the chorea, making it easier to perform daily tasks. I have seen it used in the wheelchair bound patient with positive results.
Sfinctors369 karma
I am a nurse in a long term care center. Currently take care of two HD residents. One of which is bed bound with no verbal capacity anymore, she expresses a lot with her eyes. Another who is wheelchair bound who is still high functioning and can do pretty much all activities of daily living independently.
The bed bound patient made it known that she did not want to live the way she does now but never got around to making any advanced directives, and her only relative, her POA, died in a car accident prior to getting all her wishes on paper. She did not want a feeding tube but had to have one put in due to her wishes not being written down.
My first question is have you, or your mother, given thought to about advanced directives?
And second, Have you heard of a drug called Xenazine? It helps to control the chorea, making it easier to perform daily tasks. I have seen it used in the wheelchair bound patient with positive results.
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