SamScape

Dude you're literally me in another country... I'm 24 and also have PSC and UC. I do have the additional curveball of an autoimmune disorder called Autoimmune Hepatitis. Where my immune system recognizes my liver as a threat and attacks it. I've been on several different treatments and I just started Remicade for the Ulcerative Colitis which is an infusion treatment. I no longer am in need of a transplant, but that has only made me realize how lucky I am. I'm currently on an immunosuppressive treatment with some additional steroids as well. Did they put you on prednisone by any chance? Stuff can be miserable to say the least.

My biggest symptoms were chronic fatigue and many trips to the bathroom. If you ever want to talk man, I'm totally here for you. Please don't hesitate to reach out, I know some days are worse than others and it gets tiresome at times. Sending you nothing but good vibes. Looking forward to hearing from you. You're gonna get through this!

Tacrolimus and 15mg of Pred checking in... You ever want to talk, please reach out. I know that it's not always fun, but this is actually the first time I've ever found others with similar or identical situations. Even if you just want a friend to sit and listen about the bad days, I'm here for you. A positive mindset is half the battle. We will move in the right direction. It's only time!

Thank you so much! And I very much agree that this is amazing to hear from others undergoing the same diagnosis. A friend of mine actually pointed me to this thread and asked if I moved to South Africa lol. The itchiness is honestly a real hassle, I used to sleep with icepacks on my legs to stop myself from scratching myself raw in my sleep. I can honestly say that for the first time, in a long time, that I "feel healthy".

I am very happy to hear that your UC is in remission, I'm slowly making my way there and I hope that your path to a transplant goes well! Again, feel free to reach out anytime! Also, do you mind if I ask what your ALT and AST are? I still get bi-weekly bloodwork to track my levels and they've been going down, but pretty slowly.

This is actually one of the first times I've met so many others going through our diagnosis! A friend of mine pointed me towards this thread and not going to lie, it feels amazing to read things that are exactly what I've gone/are going through. I will absolutely check out this FB group, thank you so much for the info! You are a wonderful person and I wish you nothing but good vibes and good health!