My sister suffers with Friedreich's Ataxia and is an inspiration. She was diagnosed in her teens (at Great Ormond Street in the UK). This is thirty years ago, so a diagnosis took over a decade. She has been unable to walk since 16 and finds verbal communication a struggle now.
However, what she HAS done is far greater than what she has let the condition take from her. She's travelled America with Journey of a Lifetime, swam with dolphins, been on stage with Depeche Mode and Muse multiple times (and some other bands I never remember), flew a helicopter and literally toured the world (not many countries left to go).
I've met a lot of great people through Ataxia UK. Well worth attending lots of these types of events.
RideMyBadger2 karma
Not a question, just a note to say keep strong.
My sister suffers with Friedreich's Ataxia and is an inspiration. She was diagnosed in her teens (at Great Ormond Street in the UK). This is thirty years ago, so a diagnosis took over a decade. She has been unable to walk since 16 and finds verbal communication a struggle now.
However, what she HAS done is far greater than what she has let the condition take from her. She's travelled America with Journey of a Lifetime, swam with dolphins, been on stage with Depeche Mode and Muse multiple times (and some other bands I never remember), flew a helicopter and literally toured the world (not many countries left to go).
I've met a lot of great people through Ataxia UK. Well worth attending lots of these types of events.
Wish you the best x
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