My sister had this condition, but passed away when she was very young, 6 years old. In one sense I really hated reading this, because it gives me a deeper knowledge of what she suffered, even though she couldn't communicate it herself. But in that same vein, you've given me an insight into her I never had, and a new closeness through hearing her pain articulated.
Thank you for doing this AMA, I wasn't aware of the advocacy groups, I just sent a request to volunteer some of time. I don't really have a question, so I'm just going to end this with the correct punctuation so that I don't get deleted?
Redletteroffice13 karma
My sister had this condition, but passed away when she was very young, 6 years old. In one sense I really hated reading this, because it gives me a deeper knowledge of what she suffered, even though she couldn't communicate it herself. But in that same vein, you've given me an insight into her I never had, and a new closeness through hearing her pain articulated.
Thank you for doing this AMA, I wasn't aware of the advocacy groups, I just sent a request to volunteer some of time. I don't really have a question, so I'm just going to end this with the correct punctuation so that I don't get deleted?
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