Quorum_Sensing

I'm an ICU RN at one of the few hospitals in the US that treats CRPS with high dose Ketamine, so I've spent many weeks with the patients. The stories of how it started are always interesting, some are so small and some immediately make sense. You are far and away the youngest I have heard of at 9 yrs. old. What triggered yours? Where is your pain located? Have you looked into the Ketamine treatment? I've seen amazing results.

If by some chance we have another Zellweger positive child I would probably consider abortion. I'm still up in the air about it.

This is really surprising to read. If all cases are fatal, why would you consider putting a child most importantly, or your family through this again?

"He", but thanks ;) I'm assuming I missed something that has been edited

Wow, 25-27 and I'd die. I'd say my house stays at 21-22 in the US, or I'm too hot to sleep. We tend to go with a cooler room and lots of blankets.

Choosing to terminate is a judgement call I do not think we ought to have over human life.

You know, there's an important fact that everyone who takes these positions glosses over....there is the nagging problem that you need a team of people highly trained people and an abundance of expendable medical funding to support your beliefs. Nature taking it's course means the child was never born (OP is using IVF), and wouldn't survive if they were. As a critical care nurse there is tons of emotional suffering on the behalf of the care team that you expect to take care of these things for you. There is no free lunch. Zellweger has a predicted life expectancy of 6 months. That time is spent with emotionally distressed parents and recruitment of an exhaustive care team of specialists and extremely expensive care that will not be paid by the family. There are tons of ethical reasons to consider termination, and trying again. As a father and a health care professional, I wouldn't enter myself, a child, or others into that if I had a choice.