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QueenMercury8 karma

Not OP but also have alopecia: without eyelashes your eyes are much less protected from dust etc so more easily irritated. Same with nostrils.

QueenMercury3 karma

Also not OP, but there are different types/stages of alopecia. Universalis, which affects you from head to toe. Totalis, which is considered to be just head hair (and does include eyebrows/lashes). Areata, which generally comes in patches over the head. And there's another one I forget that is just thinning of head hair. There is a little bit of mix and match - I've been head-bald for about eight years but still have my brows and lashes, but I also have very little hair on my arms.

Re: dating, my ex boyfriend and my husband never fetishized me and both thought I was beautiful as I am.

QueenMercury2 karma

Chiming in as well to say that everybody has a totally different experience. I had very large patchy loss for a year when I was 7 that grew back, then patchy loss from when I was 13-16 that mostly grew back in, followed by complete head hair loss and eyebrow loss. My eyebrows came back after a round of steroids, but one of them is mostly gone again. Some people just get patches of loss forever and others get it progressively, some people (like OP) lose a lot or all of their hair very quickly and others (like me) lose it over the course of a few years.

QueenMercury2 karma

If they appear to have lashes, it is probably falsies and likely for cosmetic reasons. Glasses do a pretty good job of keeping dust out too, though.

QueenMercury1 karma

I have totalis, and I took a round of steroids about five years ago. My eyebrows grew back, but unfortunately last year one of them started disappearing again, so now I have one and a bit eyebrows. Just found a bald patch in my lashes last night as well. I'm not keen to do steroids again, but the effects lasted four years (I had a little regrowth on my head hair but that didn't last more than a year).