Pdxduckman

My stepbrother and his daughter have both had heart transplants due to this, and are doing very well! We very nearly lost both of them, both were on VADs until they could find a donor and had issues with strokes. It was very up and down! Now it sounds like my step sister might have some signs.

Anyways, point is, have you discussed a transplant with your doctor?

Thanks for your kind words! We're very fortunate things have worked out! Our doctors were amazing!

I'm sorry to hear how you and your family discovered this, and everything you've been through!