Neosovereign

It certainly is a weird story, and OP, is not totally forthright.

I don't think he is a shill, I just think he is way dumber and naive than he thinks, so he glosses over stuff that is important.

I mean, he did somehow join Scientology in this day and age, and his gf was in for years already...

There is a bit of misinformation going around in this thread. The hamburger would make the child temporarily have a really big haze for quite a while. The high Phe levels would also cause damage. If this kind of irresponsible eating happened often if could easily cause mental retardation pretty quickly. If the child had a perfect diet, then ate a hamburger they would probably be more or less fine, but a parent that lets a PKU child have a burger probably lets them have lots of other protein.

Source: Medical school

I'm a medical student and I find this very interesting. You have said elsewhere that your doctors don't know what is wrong with you. I personally think you should try to see a geneticist. At first glance it appears to me that you have some kind of genetic abnormality that presents in many unique ways.

So to my question: How has your experience with doctors been so far? Is there anything that stands out as particularly good you could expand on? Bad? I would love too see your take on the doctor/patient relationship.

On a more positive note, I hope you are having a great life and I wish you luck in the future.

Yeah, op overestimates himself a bit lol.

At the very least, skeptical does not describe him.

Thank you for the well thought out response! I'm glad you have had some good experiences. I'm sorry you have had some bad ones. Doctors are people too and they make mistakes.

The endocrinologists you had should have paid more attention to you and thought about the consequences of the drugs they wanted to prescribe to you more. But it is important to remember that every patient is different and they are trying their best, not to mention they didn't force you to take experimental drugs, they gave you (or your mom) the option, which is always important.

Thank you for the advice btw, and I hope I can have patients like you in the future!