MewnSplash

Because he's an angel

Not OP, but I was diagnosed at 12 (28 now). I find deep breathing and trying to relax has worked for me. It's not 100%, but it has worked. For me, I have to keep my eyes open though, if I close them, I'm definetly going to go into a full grand mal seizure. As a side note, I nearly always have an aura before a full seizure.

That was exactly the situation my mom and I had. Thankfully, kids are amazingly adaptable. I just wanted to be normal, and it seems your son wants to feel the same way. My mom freaked out, crying at every appointment (I'm not faulting her at all, she was also an amazing support to me). I don't know your situation exactly, but I would try to treat him and his situation as normally ad you can. There are going to be tough situations where epilepsy is going to get in the way, and safety is always #1 (ex. I have a special life jacket when I go out in the boat fishing, it makes you flip to the front and keeps your head about water automatically) but any amount of normal you can bring to his life will be appreciated. Best of luck, and feel free to message me in the future to ask anything you want. It's tough for him, but I know, its gotta be tough for you as well. You aren't helpless or alone and there are support groups and forums for you to get information from, it helped my mom a lot. Best of luck.

I really hope it ends up being a fixable problem for you. It is a terrible situation regardless but it's nice to have something to hope for. You will find a way to adjust though. Something I used to make myself feel a little better is to remind myself that I am living in the best time to be an epileptic. In the not so distant past, medical treatment of epilepsy was barbaric. And in the slightly more distant past, we would have been considered possessed by the devil or a witch. Medicine has come a long way thankfully. Doesn't make you have any less seizures, but I took some comfort in that. Again, I really hope things work out for you, and if nothing else, you have a pretty sweet beard that makes mine a little jealous.

No problem at all, and I truly mean it when.i say you can message me anytime you have questions. I'm more than happy to share my experiences if it means I can possibly help out someone who is going through what I went through. Best of luck, you two will get through this, or at least adjust to it til the point where it's the "new normal" for you.