Mego1989

Come join us at r/ehlersdanlos. My advice is to specifically seek out drs that are EDS literate by joining online support groups for your city. Having even one dr. Who knows how EDS can affect the whole body can make a big difference in your treatment and quality of life. Self care is also majorly important, find what works for you and stick with it.

Even when you're not bedridden, you lose a lot of friends when you have a chronic illness.

They're aimed at tourists and students. I visit Detroit regularly and would use the shit out of a scooter if it meant I didn't have to ever get in a shady ass taxi.

Keep trying new drs until you find one who listens to you and takes your quality of life seriously. It's frustrating but once you have one legitimately in your corner, doing research and willing to listen to your ideas it makes a big difference.

Have you seen a physical therapist for your pelvic issues? If not, do it!