Manveroo

If it turns out to be a Marfan Syndrome, there is quite a community out there. Don't hesitate to contact them. I myself have it (32/m) and the pictures of your your chest could easily be mistaken for mine...

My father was diagnosed when he was 18. Thus it was clear that the chance of inheritance was 50%. The knowledge about it is spreading though. Medicine student all at least have heard of it and twice someone who didn't know me well asked me if I have it...