LynnisaMystery

How do you feel about actor George Takei being a "spokesperson" for those interred? Do you think the work he's done has helped in any particular way? What improvements could be made to make the current world more aware of what occurred?

My younger sister recently diagnosed and has been doing a great job of finding others with EDS online to share her experiences and socialize. Im worried she isn't active enough though and is using her condition as an excuse to be come a couch potato. She's put on weight from her inactivity and her being the same age as you makes me concerned for her future health. Do you have any recommendations for keeping at least moderately active in a way that doesn't simply turn you into a pile of disconnected joints?