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Laney2013 karma

I almost had a lumbar puncture once. Got all the way to them sitting me up in position for it before they had to stop because my heart rate and blood pressure dropped dramatically. I was terrified, but I'm pretty sure it was the change in position that caused so much trouble. Glad to hear I was right to be scared.

Turned out I had the flu, so the puncture was unnecessary. My only symptoms were racing heart and exhaustion, so they were understandably confused.

Laney206 karma

I have nothing against porn

I think role-models should be a higher standard.

You clearly have something against it.

Laney203 karma

I have IST, which stands for inappropriate sinus tachycardia, which just means my heart rate is too fast. I've had just about every cardiac test they can do (IST is a diagnosis of exclusion), and my heart is fine, healthy, and normal. It just beats too fast.

For a long time, I knew this but couldn't get a doctor to diagnose it. And yea, I worried that I only get so many heart beats and I was using them up too soon for no good reason. I don't think that's really how it works, and people with my condition don't have very much of an elevated risk of premature death. But I still worried.

It's under control with meds now, though, and I feel much better physically and psychologically.

Laney202 karma

Maybe, but I don't really remember. And it's hard to say because my heart had been racing all day and I was having so much trouble awake and even just holding my head up. I felt pretty faint anyway, and I have since been diagnosed with POTS, which can make you pass out when you stand up. I know I had some anxiety about the lumbar puncture, but I honestly think it was the position change that caused the trouble. I have had panic attacks for a long time and by then had learned how to get through them.

It was kind of funny, though, because they called people in to help out because my hr and bp had crashed, but those people were confused because my hr was still like 60. It's just that it had been over 150 all day. The people that hand been with me already had to explain. I was pretty out of it, but I remember that and thinking it was funny.

I got admitted to the hospital before they figured out it was flu, and ended up staying for 3 days. That was the beginning of my bad dysautonomia issues. Almost 9 years ago.

Laney201 karma

So I also have inappropriate sinus tachycardia, which just means my hr is too fast all the time for no reason (lots of tests to rule other stuff out). I take a beta blocker (nadolol) to help with that, and it kind of stabilizes everything, while not lowering my bp too much.

I also have adhd (and/or brain fog. Hard to say where one ends and the other begins, but I've had adhd symptoms my whole life but was diagnosed a few years ago). So I take a stimulant for that, but I've found a lot of benefit to the stimulant, also, in helping with the fatigue and exhaustion. I feel better overall when I'm on my stimulants.

But for the pots symptoms specifically, the biggest help is lots and lots of water, as much salt as I can get, and keeping my food and sleep schedule consistent. If I'm missing meals, not sleeping enough, or getting dehydrated, I'm gonna start feeling a lot worse.

I also started showering at night and using a shower stool so I could sit, and that helped a lot. If I shower in the morning, I'll need to lay down for a half hour or so before I stop feeling like I'm going to pass out.

I've found that if I stand up for more than about 15 minutes first thing in the morning, I'm going to feel a lot worse all day. So I get ready very quickly in the morning, or take breaks at least. If I'm having a bad flare, I make sure to drink a big cup of cold water first thing in the morning, before I even get out of bed. Sit up slowly, stand up slowly, etc.

I put my feet up whenever possible. I have footrests under my desks and an ottoman next to my couch so that it's always easy.

The biggest thing I struggle with these days is anything that requires me to stand still for a while. Walking isn't too bad, but standing in lines is awful. Especially if it's hot, but even inside like at a pharmacy or restaurant. I try to avoid those situations, but it's not always possible.