KyfeHeartsword

I too have bilateral radial club arms! I'm 26 years old and from Houston.

This is me: http://imgur.com/LgasYex.jpg

Yes, let's start a club! Yes it is on both arms, I have four fingers on each hand, my left has my pinky, ring, middle, and I surgically had my forefinger removed and rotated to be my opposable digit (thumb). My right hand is completely devoid of an opposable digit and almost completely useless (except my pinky).

My experience has been... complicated. I'm sure you understand because you have always been this way as I have. Everyone else sees us as these deformed or crippled people who need help with everything and everyone asks us question about our arms (every fucking day). But we've never known what it is like to have "normal" arms so everything that we do we don't even notice it looks extremely odd to anyone else watching, it just feels normal. But I cringe hard when I see photos of myself or video. I'm completely open to questions about it, but people see my disability as a disability. I'm perfectly capable of doing anything! I'm an accomplished swimmer, skateboarder, soccer player, billiards player, and an excellent driver. My limiting factor is not my inability to do something but what everyone else perceives about it. People see us and think, "That person won't be able to do the job require because of their arms, so I'm not going to hire them."

Yes, it been hard because the majority of the people in the world don't truly know me and my capabilities so there is a slight prejudice, but I've had a good life and I'm not depressed. I'm a genuinely happy person.

Though I am not as confident as I should be in the romance department.

I've had both altered, but my left hand is my dominate hand, I needed the thumb to grasp objects better. I had that surgery when I was 3 or 4 years old. When I was born, my left hand had the skin and fingernail of a my left thumb but there wasn't a bone or any of the tendons and muscle. Because of this my new thumb (my pointing finger) doesn't have the tendon on the top of your thumb to extend it away from your palm. I am only able to pull my thumb towards my palm in order to grab things.

When I was 16 my right ulna had nearly grown completely over wrist, turning my right hand in toward my arm at a 90 degree angle. At the same time, my left ulna grew and made my left arm reach a lot farther than my right arm, causing back problems. So I had surgery, the surgeon broke my ulna in half and attached steel and titanium rod to either side of the split none and through my wrist. All of these rods were then connected together by two titanium rings with extendable rods between them. Every day for nine months I slowly pulled apart the two ends of my bone a millimeter a day. This cause by ulna to try to grow back together and therefore get longer and straighter. I've been in some serious pain before, homie.

I'll edit my post with a picture.

EDIT: http://imgur.com/npqxXDh.jpg and http://i.imgur.com/AOa2enR.jpg

Hey, thanks for doing this AMA.

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