Kwalle21

Do you or will you need contrast agent CT to overwatch how your large vessels like your aorta is impacted?

Yes it would be interesting indeed and above all lifesafing. I am working in a large hospital in Germany. Especially in an „aortic surgery unit“. As far as i know there is a risk for aortic dissection or even aortic rupture in EDS and Marfan-Syndrom patients that cannot be neglected. As you have a already said there is a malfunction in your collagen and therefore your large vessels may not resist high blood pressures as long as they would do in people without your condition. I wish that this will never happen to you, but patients we are treating with this kind of complications in particular those of young age <50yo do have EDS or Marfan. I don‘t want to scare you actually i just want to know if these few cases i see every year could have been prevented.