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Kariko832 karma

Fellow EDS sufferer here, do you have any family members that also have EDS that you know of?

When my mother got diagnosed with EDS after getting wrong diagnoses for years it was also found that my brother, grandfather and myself all had it in one way or another.

Kariko832 karma

I think it is one of the main reasons that it went undiagnosed as EDS for so long. My mother really got lucky that she switched to a doctor that just happened to know what it was and saw all of the red flags in her medical history for it.

Kariko831 karma

Funny you mention that about guys getting it as it is most prevalent in men in my family with my brother, grandfather, and a great uncle that may have had it. Until my mother none of the women in the family presented symptoms that correlate with EDS that we know of. Meanwhile my father has no trace of it whatsoever in his family, they seem pretty normal with just heart attack and cancer risk factors to look out for.