Highest Rated Comments


Kaagers22 karma

So sex just didn't happen for the first weeks while the stoma (the wound around the tube) was healing, and now it's pretty normal, except he cant lay on top of me anymore :(

Now I lay on top of him :)

Kaagers12 karma

Considering I've got granulation tissue right now, I'd say it's freaky enough on it's own.

Kaagers9 karma

Not being able to hold food or water down for weeks and a week in the hospital, if I'm going to be totally honest.

Other pros include- Much higher quality of life in terms of not throwing up all the time. Whenever I feel sick I can just drain or vent. I am not always nauseated or in pain. Also they will soon replace the tube with a low profile button.

Kaagers7 karma

Hey, a fellow Tubie! Not very long on this, stoma is still healing. How long have you had yours?

Kaagers6 karma

the inital are EDS, its an easy mix up. I dislocate my hips on the daily, and shoulders less regularly. I have a lot of jaw issues. My pain on the EDS front is currently decently well managed, though someday i have day where I can't really function at all.

Both of those are classic symptoms of EDS is she aware of /r/ehlersdanlos ? they are super helpful over there.