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K8tothewags1 karma

Last year, 22q at the zoo was on April 22. I think part of the goal was to have it on a weekend in the Spring :) it's still in its infancy, but takes place at hundreds of zoos around the whole world!

K8tothewags1 karma

As a fellow mommy to a 22q(t)- THANK YOU!!!! We are constantly struggling to raise awareness for this syndrome, and I appreciate your effort more than I can express!!!

My daughter with 22q is named Aubrey, she is 19 months old, and the best kid I ever could have imagined being the mother to. At 3 months old, she endured an open heart surgery, and it was during this surgery they discovered her thymus was missing. This led to genetic testing, and ta-da, 6 days later, we had our answer that Aubrey had 22q. We've been so lucky that her syndrome presentation has been mild so far- heart issue that was corrected with surgery, and some low immune numbers, but miraculously, she's rarely sick! She's speech delayed, but using sign and her receptive language is coming along.

Thank you again!!