Jerbearbruh

May I ask if you didn't mid of course, where is the CEOs located in your body? An has it spread at all? My sister has crps developed after a blood infection that damaged her neuropathy... (Long story) but just wondering as hers started in her foot an is slowly traveling up her leg... Also I am being told that I might be developing crps in my foot as well... We both have a similar bone anomaly condition... But it's not genetic. Also we have both neuropathy damage is to different reasons (hers was slightly explained, mine was due to a nerve having to be cut out of my foot from so many surgeries damaging an incasing my nerve in ungodly amounts of scar tissue, which they know think might be causing it) thank you so much!

Edit ; also if you want any more info just send me a PM an I can really tell you the full stories... Also if it is allowed an you don't mind me asking where are you from?/located? Not address just city/state... My sister has had a lot of trouble finding docs but she now goes to one of the top researching facilities for CRPS/RSD. She is currently undergoing certain research procedures an experimental procedures, just because she hasn't been able to walk in almost 10 years now an she is more than willing to try WHATEVER she can possibly to get pain relief/any relief

Wow... I want her to know that I definitely don't understand exactly what she's going through but I feel deeply for her... She is so strong an I hope she knows that! Thank you, I'll be looking forward to get the chance to chat! Edit: slight spelling

Thank you for your reply! Much love, an high hopes you find something too... I am 22 an she is 30. I actually live right outside of philly... An I honestly encourage you to definitely try CHOP!!! Philly has some of the best doctors in the country... My sister also has an essential tremor disorder along with a serious auto immune disorder which makes her super prone to getting sick... Her tremor disorder basically got diagnosed that because she is allergic to her own adrenaline it causes her to have slight seizures/tremors. It doesn't help her crps either... All of our doctors (except my pain mgmt Doctor only cause he moved over to NJ) are all in philly... She goes to a certain Doctor that is specifically for crps an he has been trying all types of procedures for her... Have you had any certain procedures that stand out you can tell me you've had? She is waiting approval right now to try a certain procedure where they inject a certain type of slug venom that has been known to reverse the effects of crps or at least slow/stop the spreading of it... That is only one of many that she's trying... She's also trying a new spinal stimulater that hasn't been fully approved by the FDA yet but it's also shown great relief for people who have crps