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Jemb1235 karma

I think thats where you are going wrong. You are narrowing your focus too much. You wont find something if you dont look for it. A Paediatric Consultant in a national hospital has found all of these tests to be completely abnormal on my teenage son who is diagnosed with M.E. His H/S ratio is way too high meaning his immune system is in overdrive and the off switch isnt working. That's what ME is about btw. Its consistent with research findings by other specialists in the US btw, i.e. that the immune system burns itself out over a period of the first three years or so. Sadly not enough doctors are enlightened enough to test for these abnormalities because many just stop at the traditional tests and then tell very sick patients its 'all in their head'. Oh and btw his NK cell function is way low as well. The research is there if anyone wants to take the time to look. The problem is that the research numbers are relatively small (at least up to now - but trials are getting bigger) because money wasnt put into this area of research. Have you heard of Ampligen and the trials in the US? Have you heard of the Rituximab trials in Norway? Have you heart of the micriobiome research Prof Lipkin is carrying out on MEcfs patients in the US?

Jemb1234 karma

It's obvious that even when the science is presented to you, you won't accept it. I'm afraid you have a severe case of cognitive dissonance. When a healthy, happy, sporty, fit child with his whole future ahead of him, comes down with a virus and simply never recovers and ends up barely able to walk a few steps, cries with the pain of muscle spasms, sometimes cannot sit up in his bed without help, has a total bowel shutdown, has constant nausea, regular bouts of vomiting, headaches all the time, daily nosebleeds, tinnitus, vision deterioration, sudden onset dyslexia, TMJ, swollen lymph nodes, rapid heart rate at the smallest movement, joint pains, balance problems, temperature dysregulation and total circadian rhythm reversal, you can look at them and see there is nothing wrong? I think you are in the wrong business

Jemb1232 karma

You mention 'dozens' of tests you can run. What tests are these please?

Jemb1232 karma

Yes I have to agree. There has been a deliberate conflation of the term CFS and ME. M.E. was first discovered by Dr. Ramsay when an outbreak amongst staff at the Royal Free Hospital hit almost 300 people. Its an easy matter to google Ramsay M.E. and you can see the criteria and symptoms. It was the CDC in the 80's when investigating a similar outbreak in Lake Tahoe that arbitrarily renamed what looked exactly like M.E. to a new name of CFS, thereby confusing the medical community for decades and attempting to bury M.E. completely. For those that are unaware, M.E. is a neurological illness that is listed under the WHO diagnostic code G93.3 and it has a separate code from CFS which is R53.82 http://www.icd10data.com/ICD10CM/Codes/G00-G99/G89-G99/G93-/G93.3

Jemb1231 karma

So would you check things like NK cell count? or CD counts?