JanySpades

I'm a biology student and from a purely scientific viewpoint I find this very very interesting, so thank you for sharing!

I have a bunch of questions. First of all, why was it neccessary to remove your would-have-been ovaries? I see that they didn't grow out quite as they should (as you described) but was the removal neccessary, or was it more for preventing problems with it (like people removing their wisdom teeth)?

Secondly, what kinds of hormones do you need to take? Is your body entirely unable to produce these hormones, or does it produce the wrong amounts of hormones because of the differences of genotype and phenotype?

Last but not least, from what I've heard (correct me if I'm wrong though) Swyer syndrome isn't vastly common. A friend of mine has a rare syndrome too, and participates in scientific work regarding that. Do you do that too, or have you ever been asked to? If not, would you? I believe humans like you might be a key factor to figuring out the scientific basis of gender identity, as that is something science still struggles with.

Feel free to skip over any questions that you don't feel comfortable with. And thanks for sharing!

from what I've researched roughly 1 in 20,000 women has xygd. there's a "pure" form called xx gonadal blah blah blah maybe that's what your friend has, I think it's almost the same.

First of all, thanks for taking the time to answer! That's a lot more than I expected. Guess such things are not so rare! What my friend has is something entirely different, it's just very rare, and I thought XYGD would be equally rare but I suppose it isn't, considering how many people must have it alone in the city I live in.

the doctor who diagnosed me said he had a colleague I could donate blood to for research but I never heard anything else about it after that.

I gotta ask - did you do it?