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Illegit_Sandle75 karma

I've actually had this problem since I was born. Growing up was tough for me (I'm 21 now, going to be 22 in march), because I would randomly pass out from overheating, and the doctors had no idea what was going on. I was tested frequently for epilepsy, or any other possible conditions dealing with my brain, and even my heart (I remember being on a heart monitor, and having to have an EEG? scan.. It was scary). My first known pass out was when I was 2 months old. I actually figured it out myself that I was overheating a few years ago, and that I wasn't sweating. I have no memories of ever sweating during my childhood, but seeing other children sweat.

I now have a cooling vest that I just shove in a ziplock bag (pre-soaked), and carry with me when I believe I may have a chance of entering a too warm environment.

Stay strong, this disease sucks, but you can still live a semi-normal life. =)

Illegit_Sandle33 karma

That's exactly what I thought, haha. I know it's more common for people to develop patches where they don't sweat (but then sweat in other places to make up for it a lot), but that is caused from a vitamin deficiency, and can be fixed (My Fiance actually has this problem, we started drinking some healthy smoothies and it started going away.. His patches are visible red areas where he doesn't sweat).

I've found doing yoga at home is probably the best exercises for my condition, as it subtly works your muscles pretty well, but doesn't over exert yourself like lifting weights, or running. It's been mentioned previously, but swimming is an excellent exercise as well. Just be careful about getting out of the pool, and wear plenty of waterproof sunscreen. (Indoor pools are best)

When you pass out, make sure people KNOW to put cold water/ice on the back of your neck, chest and wrists. I've saved having to take many trips to the hospital by just telling people "I don't sweat, if I pass out, put ice/water on neck, chest, and wrists." (Though some people freak out and you end up going anyways..)