Iatros1603 karma2016-09-10 18:28:48 UTC
I basically feel fine at this point, can eat most anything, and can get around doing my activities of daily living without any problems. Some days, I kinda even forget I have it. I still get annoyed at the same shit I did before. Like inattentive drivers, for example. I still want to try to live my life. I have a very real shot at living 10+ years after my diagnosis.
The one thing that frustrates me still is that my anemia/low blood count hasn't gotten better. It really limits my ability to exercise. 4 flights of stairs and I'm huffin and puffin. Before this, I could run 3-4 miles straight with an average time around 8 minutes per mile. Now I can run 0.3 miles before I have to stop and walk, and going 1 mile takes me about 12 minutes.
But I look fine to the outside observer. So people just think I'm an out of shape sack of shit, haha.
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Iatros1158 karma2016-09-10 18:52:40 UTC
Yeah, no problems there since about a month out from surgery. You really wanna get into the weird questions, eh? Let's do it.
Erections were painful for a while after surgery. For about 2 weeks after the surgery, I basically didn't think about sex or anything remotely related to it. When my sex drive started working again, finally, it really hurt. It took a couple days of trying to do it more and more until it stopped hurting.
I think it was painful from not being utilized for 2-3 weeks. So, guys, let this be a lesson to you. Use it or lose it.
Iatros1134 karma2016-09-10 18:13:36 UTC
Well, I had made a post with a lot of the imaging part already taken care of in /r/medicine earlier in the week, so that part was done. I basically then just took the original post, and one of my comments from the original thread and put them together. I guess in total, and to finally answer your question, 4-5 hours.
I don't know. I think I have an at least somewhat entertaining writing style. I really have no idea how interested or disinterested people will be with my story. I hope people read it, but I'm doing it for myself, most of all. Writing helps me express my feelings and organize my thoughts.
Iatros373 karma2016-09-10 19:35:00 UTC
While I most certainly thank you for your kind words, I do want to make one thing clear for people.
I'm not particularly brave. People keep calling me that, though. I don't get it. I'm just doing the only thing that gives me a chance in hell of living more than a year or two.
And, plenty of people with benign disease like Crohn's or MS are equally brave for dealing with their illness. Disease sucks. I want to wipe it out. Hence, doctor.
But anyone with the capacity for rational thought would do the same thing, if in my shoes.
Iatros349 karma2016-09-10 18:44:11 UTC
Living in the moment is definitely learned skill. One big aspect of it is to stop thinking about how great things will be in the future. I used to do that too, say things like, "I'll be happy when [whatever]." Stop. Think about what's happening now, right in front of your face. Live in the now. I've tried to do that, and it has made my day to day life richer.
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