Hulu_n_SnuSnu

Its the same thing just different name. And I will keep that in mind.

Ketotifen was my original, but after a while it seemed to stop working. Hopefiully the xolair works longer. Did you do any of the bone marrow aspiration tests? I am not looking forward to mine.

Xolair is what is being recommended for me as well. Have had decent-ish success with otc histamine h1 and h2 receptor drugs. They managed to lessen symptoms, but don't always keep me out of the hospital.

I know that feeling. My immunologist thinks I have MCAS as well. Originally was told IBS, allergies etc. Eventually led to mastocytosis being the cause. Just recently though have had tests for other things, MCAS among them.

Do you have any medications like mast cell stabilizers?

Was MCAS your initial diagnosis or was it a long process of elimination?